NCOA Senior Housing Tool Helps You Age in Place
The National Council on Aging (NCOA) has launched a new site that can help you find information, tools, and consumer advice to use and protect the value in your home. Get custom advice for your life situationÛÓeven if you need help now.
It was created by the nonprofit National Council on Aging and made possible by a generous grant from the FINRA Investor Education Foundation.
- Want to plan ahead to ensure financial security?
NCOA has solutions if you:
Need to reduce debt
Face rising homeowner expenses
Want to refinance a mortgage
Prepare for unplanned expenses
Deal with an immediate problem
åÊ - Have a cash shortfall due to a health problem, income loss, or scam?Don’t delay in finding help if you:
Need more income
Need cash for health expenses
At risk of foreclosure
Worried about home equity scams
Protecting the house in bankruptcy - Want to Enhance Quality of Life?
NCOA addresses:
Aging in place
Preserving home equity
Using home equity to enjoy life
Investing home equity
Coming Out of the Closet with Caregiving
The AARP Public Policy Institute issued a paper entitled: A Call to Action: What Experts Say Needs to Be Done to Meet the Challenges of Family Caregiving.
They invited 10 authors who have written about the challenges of family caregiving to participate in an AARP Solutions Forum on the issue. Here are some of the highlights.
In many respects the conclusions are not much different than the National AlzheimerÛªs plan. It calls for:
- Greater public education and awareness
- More financial relief
- Better communication, coordination, and collaboration with health care professionals
- Heightened recognition of and support for family caregivers in policy initiatives
Ten areas of focus were put forth:
- Caregiving Is a Role and a Relationship – Caregiving is based on a relationship, but caregiving is an additional role that requires preparation, acceptance, support, and resources.
- Families Benefit from Discussing Preferences and Decision Making with Each Other and with Health Care Professionals.
- Long-Term Services and Supports Are Expensive.
- Communication, Coordination, and Collaboration Are Fundamental to Good Care.
- The Most Vulnerable and Traumatic Points in Health Care and LTSS Are Transitions from One Setting to Another.
- Some Help and Support to Care for the Caregiver Is Available if It Can Be Found.
- Being ÛÏProactiveÛ Is the Key.
- Public Policy Solutions Are Crucial.
- Advocacy, at Both the Individual and System Levels, Is a Fundamental Part of Caregiving in TodayÛªs World.
åÊ - Culture Change Is Needed – Caregiving is now a normal part of life, yet family caregivers remain invisible, isolated, coping stoically, getting random advice. Caregiving families need public acknowledgment, family-friendly workplace environments, and affordable services and supports to assist them in their caregiving role and to help them maintain their own health and well-being.
In addition, lengthy discussions produced these observations, which I share randomly:
- Family caregivers are thrust into this role without preparation, training, or support.
- Older people are marginalized by society. Family caregivers must understand and speak their loved oneÛªs language once a person suffering from dementia looses the ability to use words.
- It is critical for caregivers to take breaks and get out of the house.
- Caregivers should focus on maximizing what their loved one can doÛÓ but accept what the person can no longer do.
- People need to anticipate that they will become caregivers; educate themselves that there will be physical, emotional, family, and financial issues; and talk to others.
- An isolated army of caregiversÛÓeach operating as a force of one with little social infrastructure and cultural support needs to coalesce in a caregiver social movement similar to what occurred with the feminist and gay rights movements.
- Look for a doctor or nurse who can serve as your health care ÛÏquarterback.Û
- Engage communities and faith-based institutions as a way of supporting caregivers.
- Improve transitions from one setting to another, and train all health professionals to communicate better with the individual and family.
- Incentivize health care workers to include family caregivers as partners in care.
- Educate Americans about what Medicare doesÛÓand does notÛÓcover.
- Promote ways that people can talk to each other and share their stories.
- Urge a national discussion about how Americans approach advance care planning.
- Have the option of putting pretax dollars into flexible spending accounts to help pay out-of-pocket costs for eldercare expenses irrespective of whether or not the older adult is a legal dependent of the caregiver.
- Encourage primary care clinicians and other health care professionals to routinely ask every Medicare beneficiary if he or she is a family caregiver.
- Pursue the adoption of electronic health records that include a line designating the primary family caregiver.
- Educate health care professionals and family caregivers about caregiversÛª rights to receive health care information about their loved one when they are directly involved with the individualÛªs care.
- Create a national council of family caregivers and advocates, including celebrities, to heighten attention to family caregiving issues, to protect the well-being and vital interests of families, and to identify potential solutions to meet the growing needs.
If you scour this blog and my other blog, you will find hundreds of posts on caregiving covering many of these issues. My platform of ÛÏEducated AgingÛ is meant to help not just caregivers and those for whom they care. It is about helping all of us prepare for aging so that it does not always become a crisis situation. Physical aging, emotional aging, financial aging ÛÒ these are all issues that will affect quality of life as we age.
I encourage more discussion around this. In fact your input is vital to a survey I am conducting in anticipation of developing a smart phone application for caregivers. We initiated this survey last year but frankly have not acted on the development of the app. These insights from the AARP discussion really help to hone in on what might be important in an app. But you the end user are best to share that. Can you help? Click here to take survey.
Male Caregivers Have More Than Doubled
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| Men Increasingly Being Called on to be Caregivers |
In the last 15 years, the number of men caring for loved ones with AlzheimerÛªs or dementia has more than doubled, from 19 to 40 percent, according to the AlzheimerÛªs Association.åÊ
The trend mirrors the higher number of women with the disease ÛÓ 3.4 million compared to 1.8 million men.åÊ
Experts attribute the increase in male caregivers to several societal changes, including evolving gender expectations as well as new life expectancy rates.
ÛÏMen sometimes can be better positioned than women to serve as caregivers, said Julie Bach to the Columbus, Indiana newspaper The Republic. An assistant professor of social work at Dominican University she noted that women often attempt to tackle care giving alone, feeling guilty about the burden they place on others. Men, however, are more inclined to seek out help in the difficult process.
“Women just want to vent, and guys just want to fix things.Û
The size of the average family has become smaller, so leaving the caregiving to women is not always an option.åÊ
What is your experience?
Link Between Sleep and Alzheimer’s? (VIDEO)
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